The journal

Entries

Letters, snapshots, and the days around a transplant — as they were written, from the first day to the last.

94 entries · oldest first

December 2, 2010·snapshot

Found the plug for Tigger!

Found the plug for Tigger!

December 2, 2010·essay

December 2, 2010 Probably done collecting stem cells

Adrian is most likely done collecting stem cells, the result will be in, tomorrow morning. (MD Anderson called tonight, said it looks like he is). He has to call to find out and if he is for sure, he…

December 2, 2010·note

Pretty Cool

Pretty neat - the blog has been read in all the countries below :) United States Sweden Canada Germany India Netherlands Norway Japan Slovenia United Kingdom

December 3, 2010·snapshot

He's back home!!!

He's back home!!!

December 4, 2010·essay

December 4th, 2010 Back home before next trip to Houston

Sooo..... Yesterday I was texting with Adrian back and forth during the day, when he was going to meet with Dr. Alousi and all of that. The last message said he was meeting with the nurse. After…

December 5, 2010·note

Urghhhhhhh...

My computer packed it in tonight :(Taking it to Mac store tomorrow, hopefully nothing bad. Might be a few days for updates Catia

December 7, 2010·snapshot

Early morning, going to Houston

Early morning, going to Houston

December 7, 2010·essay

December 7, 2010 Back in Houston

Adrian headed back to Houston this morning and had a bone marrow biopsy when he arrived.. That was it for today's appointments. You have seen the schedule for the rest of the week and know it is…

December 8, 2010·snapshot

My friend sent this picture and it is so appropriate!

My friend sent this picture and it is so appropriate!

December 9, 2010·essay

December 9, 2010 Aj is back home again

It will be really brief tonight, I am not sure if I am coming down with something or if I am just really cold and sore from running. I think I am going to sleep with this laptop on my belly, like a…

December 11, 2010·snapshot

Princess party!

Princess party!

December 12, 2010·essay

December 12, 2010 Back to Houston again!

We had a great weekend, Princess Party, Holiday Party and hanging with friends! Gorgeous day today, supposed to freeze tonight!! Yeay!! Quite funny, earlier this year, not sure all of you read the…

December 13, 2010·essay

December 13, 2010 Lucia day in Sweden!

It is Lucia in Sweden today - she comes in the dark and spreads light. She has a crown with candles in her hair and she sings songs. He saw Dr. Alousi this morning, then they had missed out on…

December 14, 2010·essay

Day -7 to 0

This is how A's schedule looks like this week. -7 & -6 are completed and Adrian feels fine tonight. He's been working most of the day. As you can see, E drug is the same as in ICE. That is good,…

December 15, 2010·note

Chloes Santa letter

I hope your eye feels ok. I know i have been naghty. This year. Im trying to get nicer this year. Love chloe For santa claus

December 15, 2010·essay

December 15, 2010 DAY -5

For those of you who do not know, Santa Claus (Tomten) comes to us every year on the 24th in Sweden. Since we celebrate Swedish Christmas, Santa is coming next Thursday. Everyone already knows Santa…

December 15, 2010·snapshot

PET scan from last week - all clear!!

The dark spots are from the liquid they inject - NOT cancer! This is how you want it to look!

December 18, 2010·essay

December 18, 2010 Day -2

Adrian is hanging in there like a champ. There is one more day left of the high dose chemo of the C and E. Then he has the drug tomorrow that he has not had before. It hasn't wiped him out…

December 20, 2010·note

Day 0!!!!!

Today is a new birthday!!! Catia

December 20, 2010·note

Starts in 10 min

Catia

December 20, 2010·snapshot

We r here

We r here

December 20, 2010·snapshot

We made it

We made it

December 21, 2010·snapshot

Day 1 !

He's doing great!!! We are all hanging out in the day room. He's doing way better than expected! I'm so happy!!

December 21, 2010·snapshot

Ronnito!

Ronnito!

December 21, 2010·snapshot

We are having pizza night on the transplant floor

We are having pizza night on the transplant floor

December 22, 2010·essay

Day 2 - December 22, 2010

It is Day 3 and I can't tell you how happy I am! Adrian has been doing above and beyond any expectations. Even the nurses tell him he looks great and they can't believe he doesn't have even one…

December 22, 2010·essay

Day 3 afternoon

After I had breakfast this morning I spoke to Adrian and he was not feeling great. His WBC is 0.4 which they think is his low and it will go up from here. His stomach has been burning and he got some…

December 23, 2010·essay

Day 3 December 23, 2010

I didn't go over to see Aj last night. He wasn't up for visitors. They told him it is the chemo that he is feeling. It is reassuring that it is kind of expected, but bummer since he was doing so well…

December 23, 2010·snapshot

Day three still

Day three still

December 23, 2010·note

Day 3

Adrian is not feeling great today, he has sore throat and has been throwing up. His skin is itching a little as well. Nurses gave him something for nausea that knocked him out for a bit. Catia

December 23, 2010·note

aj stem cell transplant

Here is a video of the actual transplant. Can't remember if i posted it or not, if I already have - Sorry!!!

December 25, 2010·essay

Day 5 Christmas day!

Adrian is doing ok. It could for sure be better, but it is as expected. I guess it is as good as it can be. His WBC is down to 0.0 - which means zero immune system. As horrible as I think it is that…

December 25, 2010·letter

Fwd: Official Announcement from the North Pole: Cloe, Sienna and Olivia have been found!

This is a letter Santa wrote the girls yesterday. We had a phenomenal evening with him last night. What a blessing he is!!!!!! I will post some pictures later tomorrow - the kids were in awe!!!…

December 27, 2010·essay

Day 6, December 26, 2010 Almost a week

It has been almost a week since mini birthday! Adrian is not feeling like celebrating anything. Last night was a really rough night and his throat is worse than before. I cringed when he described it…

December 27, 2010·snapshot

Gingerbread house @ MD Anderson

Gingerbread house @ MD Anderson

December 28, 2010·snapshot

Girls giving Adrian gifts

Girls giving Adrian gifts

December 28, 2010·snapshot

Fabby & Adrian

Fabby & Adrian

December 28, 2010·snapshot

IV fluids and antibiotics

IV fluids and antibiotics

December 28, 2010·note

Day 8, December 28, 2010

WBC 0.1 !!! It's going up, any little increase is good. Fever is gone as well. Catia

December 28, 2010·snapshot

Holding on

Holding on

December 28, 2010·snapshot

On the floor

On the floor

December 29, 2010·snapshot

Some Pictures from Christmas!

Some Pictures from Christmas!

December 29, 2010·essay

Day 8, December 28, 2010

Quick recap - Adrian felt really well last week day 0 and 1, then it kind of just went downhill from there. Sores in his throat, very itchy rash on his head he became more tired and just felt out of…

December 29, 2010·essay

Day 9, 29 December 2010

Not a whole lot of changes from yesterday. The WBC is still 0.1. The doctor said it can take a few days for it to go up from there though. Wait, wait, wait.... His throat is still the same. The only…

December 30, 2010·note

Day 10, 30 December, 2010

WBC 0.5 !!!!!! Slowly but surely..... :) :) :) :) Last night was the worst night to date, because of his throat. He wasn't able to sleep much at all.

December 31, 2010·snapshot

Olivia fell asleep with her headband

Might be hard to tell, but the headband has a small hat on it. Just sooo cute

December 31, 2010·essay

Day 10/11, December 30/31, 2010 NEW YEARS EVE!

Let's ring in the New Year tonight and all wish for a Happy, Healthy and Wonderful 2011 !!! The counts did go up 0.4 in two days which is another little step in the right direction. We went to see…

December 31, 2010·snapshot

Almost midnight

Almost midnight

December 31, 2010·snapshot

New Year's Eve

New Year's Eve

January 1, 2011·essay

Day 11, December 31, 2010 New Years Eve - HAPPY NEW YEAR!!

Only 34 minutes left of 2011! WBC went up to 2.2 today! Adrian's throat is sore but not as bad. Eating still hurts and I keep bringing him soup in the evening when we visit. Almost all his eyebrows…

January 1, 2011·note

WBC 3.8 !!

It is going up!!! Catia

January 1, 2011·essay

Day 12, January 1, 2011 Pizza!

Counts are up and pizza going down. The sore throat is getting better. I was hoping it was going to be the best pizza he's ever had. :) but his taste buds aren't back yet. At least it is some kind of…

January 2, 2011·snapshot

Getting out!!!!!!!!!

Getting out!!!!!!!!!

January 2, 2011·snapshot

@ the zoo

@ the zoo

January 2, 2011·snapshot

A quiet afternoon

A quiet afternoon

January 4, 2011·essay

Day 14, January 3, 2011 First night's sleep out of hospital!

Went to visit Adrian yesterday morning. Our friends Brian and Danielle were in Houston for a football game and had come to say hello to Adrian as well. It was nice to see them. I remember first time…

January 4, 2011·essay

Teddy Bear

I just came up to our bedroom and found this dude in the bed. This is a teddy bear the volunteers gave to him on Christmas Day. When driving home I heard the girls talk about where they should put…

January 4, 2011·note

Interesting article

I saw the other post I did from my phone didn't have the link! Blood test to spot cancer gets big boost from J&J

January 6, 2011·snapshot

Lake Austin is lowered !

Lake Austin is lowered !

January 8, 2011·note

A snapshot

Adrian has been home since Thursday and is doing extremely well! Catia

January 9, 2011·snapshot

Bowling !!

Bowling !!

January 9, 2011·video

Chloe bowling

Chloe bowling

January 9, 2011·snapshot

Seriously??? In January???

Seriously??? In January???

January 9, 2011·essay

Day 20, January 9, 2011

It is not a whole lot to write about right now :). Good for Adrian, good for me - good for everyone!! Adrian came back home on Thursday afternoon and has been home for the weekend. He left tonight to…

January 9, 2011·essay

Lot of International blog readers!

We now have people in all of these countries reading the blog! I hope it is helping others out there who are in similar situation. United States Sweden Canada Netherlands Germany India Croatia Norway…

January 13, 2011·note

January 13, 2011

Quick update: Adrian is doing great!

January 14, 2011·note

January 14, 2010 This has nothing to do with cancer at all, but it touches your heart

CNN Article

January 18, 2011·essay

Day 29 - January 18, 2011

Things are going really smooth here. Adrian is doing well, he is due to go to Dr. H to do blood work. (routine) and has been scheduled in the middle/end of March to do the CT, PET scans and the bone…

January 21, 2011·snapshot

Cold!!!

Cold!!!

January 26, 2011·essay

January 26, 2011 First lab work since leaving Houston

Adrian went to see Dr. H here in Austin today to do routine lab work. His WBC is 4.2 !!!!!!!!! This is excellent news!!! It is all baby steps, one at the time... or it used to be. Right now…

January 29, 2011·snapshot

@ W having lunch!

@ W having lunch!

January 31, 2011·note

Wise words from Chloe 6 years old

Chloe's words: "You know what?! Moms knows so much more than dads, because they have eyes in back of their heads. Moms just know everything! " Catia

February 2, 2011·snapshot

Brrrr

Brrrr

February 2, 2011·snapshot

Iced over

Iced over

February 2, 2011·snapshot

Birthday!!!

Birthday!!!

February 3, 2011·note

Weeknight dinner!

Aj and his girls!!

February 4, 2011·snapshot

Winter wonderland.... Almost!

Winter wonderland.... Almost!

February 4, 2011·snapshot

Even school is cancelled!

Even school is cancelled!

February 4, 2011·snapshot

Snow day map

Snow day map

February 8, 2011·snapshot

Wynn

Wynn

February 10, 2011·snapshot

Thursday snapshot

Thursday snapshot

February 13, 2011·snapshot

Lake is back up!

Lake is back up!

February 14, 2011·snapshot

Olivia's valentine - Mack! She got a chocolate rose :)

Olivia's valentine - Mack! She got a chocolate rose :)

February 14, 2011·snapshot

Olivia & Mack

Olivia & Mack

February 25, 2011·note

Getting ready for Colorado!

Adrian went to see Dr. Hellerstedt today. WBC 3.3 and he is doing phenomenal. :)He has started going back to the gym - getting ready for our ski trip. His hair has also grown back!

March 6, 2011·essay

March 6, 2011 SPRING IS IN THe AIR!

Although it is kind of cold in Austin today... :) We are now a year and a bit out from the first time we said Adrian and cancer in the same sentence... Geez... what a ******** year it was!! In the…

March 9, 2011·snapshot

New addition!!!

This is our new baby - Juicer!!!!

March 12, 2011·video

Chloe skiing!!!

Chloe skiing!!!

March 13, 2011·snapshot

Powder!!!

Powder!!!

March 13, 2011·snapshot

Aj and Taylor

Aj and Taylor

March 30, 2011·snapshot

Fabby & Aj

Fabby was here last week. We had a great time!! Adrian is doing great, he sprained his shoulder while in Colorado. But it will heal quickly! As you can see, hair is back!

March 31, 2011·letter

Fwd: Johns Hopkins Update - VeryGood Article

> Johns Hopkins Update - Very Good Article AFTER YEARS OF TELLING PEOPLE CHEMOTHERAPY IS THE ONLY WAY TO TRY ('TRY', BEING THE KEY WORD) TO ELIMINATE CANCER, JOHNS HOPKINS IS FINALLY STARTING TO TELL…

April 1, 2011·snapshot

Chloe wake surfing!

Chloe wake surfing!

April 1, 2011·snapshot

Lake light

Lake light